Trusted users explain how they are benefitting from TIHM

People in our trusted user group say they are already benefitting from the technology used in the TIHM for dementia study
Trusted users explain how they are benefitting from TIHM

Trusted Users meeting Nicola Blackwood, MP

A group of 20 'Trusted Users' recruited to test the technological devices being used in the TIHM for dementia study say they are already benefitting from the technology in their homes.

Members of the Trusted User Group recently met the Minister for Public Health and Innovation, Nicola Blackwood, to share their experiences of using the technology. They said they felt the  technology was helping them to better manage their health and they were hopeful it would help them to stay safe and well in their homes.

The Trusted User Group is made up of people with dementia and their carers from across Surrey and North East Hampshire who have been trialling the technology prior to the study going live. The group will run alongside the main study and provide ongoing user feedback.

Marion and John Edwards, from Shepperton, are part of the Trust User Group and have been trialling some of the devices. Marion said: When you are supporting someone with dementia, routine is extremely important. The technology we're using in this study requires you to take some simple health readings every day and we're finding the task of doing this is proving helpful in reinforcing these much needed daily routines.

She added: I think one of the main attractions of this study is that it can alert you to potential health problems, before they become too serious, which I hope will help us to avoid A&E. It also provides you with peace of mind when you have to go out and leave the person you are caring for."

John said: "I think the technology being used in this study could be extremely useful.  We know someone who could not get a carer so they had to stay in hospital for longer than they needed to. If they had this sort of technology, they would have been able to go home much sooner.

"I am hoping this technology will keep me out of hospital and away from the doctor."

Phillip Bell and his wife, June, from Farnham, are also in the Trusted User Group.  June said: "The technology is already making us more aware of our health and what steps we can take to stay well. When you are recording your blood pressure and oxygen levels every day, you start thinking about what you can do to improve those readings."

Her husband Phillip said: "Our aim is to spend as long as possible in our home and to try and avoid needing A&E. We believe the technology used in this study could help us with those aims."