Receiving a young-onset dementia diagnosis can bring many different feelings and challenges. However, there are ways to manage symptoms, maintain your independence and continue doing the things that matter to you.

This page offers practical advice on managing everyday activities, looking after your physical and mental health, and finding support when you need it.

Explore the sections below for ideas that may help you live well with dementia.

Memory problems can make everyday life harder. There are simple things you can try to help you remember important information and stay independent.

Remembering things you need to do

  • Use a diary or calendar to keep track of appointments.

  • Write a to-do list and tick off tasks when they are done.

  • Set reminders on your phone or use an alarm.

  • Keep a regular daily routine.

  • Ask your pharmacist about ways to help you remember your medication.

Finding things at home

  • Keep important items, such as keys and glasses, in the same place.

  • Use labels on cupboards and drawers.

  • Keep important phone numbers somewhere easy to find.

  • Try a tracking device to help find lost items.

Finding your way around

  • Plan your journey before leaving home.

  • Use familiar routes when possible.

  • Take your phone and the number of someone you trust.

  • Use a map or navigation app if you find it helpful.

  • Ask for help if you feel lost or unsure where you are.

Having conversations

You may sometimes forget names, lose track of a conversation or find it hard to think of the right word.

These tips may help:

  • Ask people to speak slowly or repeat information.

  • Write down important details.

  • Describe what you mean if you cannot remember a word.

  • Give yourself time to think and respond.

If you are finding communication difficult, speak to your healthcare professional about speech and language therapy.

You can also visit Dyscover for support with communication difficulties.

For more advice, read the NHS guide to living well with dementia.

Looking after your physical and mental health can help you feel better and stay independent.

Medication

Some medicines can have side effects that affect how you feel.

  • Take your medication as prescribed.

  • Speak to your GP or pharmacist if you have concerns about side effects.

  • Ask your pharmacist about tools that can help you remember when to take your medication.

Do not stop taking prescribed medication without medical advice.

Eating and drinking

Eating well and drinking enough fluids are important for your health.

  • Try to eat a healthy, balanced diet.

  • Drink regularly throughout the day.

  • Ask for help if you find shopping or preparing meals difficult.

  • Speak to your GP if you are losing weight without trying or having problems eating.

Find out more about healthy eating on the NHS website.

Alcohol

Alcohol can affect your memory, balance and sleep. It can also interact with some medicines.

Speak to your doctor if you are unsure whether it is safe for you to drink alcohol.

Read the NHS advice about alcohol.

Staying active

Regular activity can help your physical and mental health.

Choose activities you enjoy, such as:

  • Walking

  • Swimming

  • Gardening

  • Dancing

  • Gentle exercise classes

You can also find local activities through Active Surrey.

Rest and relaxation

Taking time to relax can help you manage stress.

You might enjoy listening to music, spending time outdoors, reading or trying breathing exercises.

Try to make time for things you enjoy, even if you need to do them differently.

Keeping in touch

Spending time with other people can help you feel connected and supported.

Try to keep in touch with friends and family. You might also enjoy joining a group or trying a new activity.

Regular health checks

Remember to attend regular appointments with your GP, dentist, optician and hearing specialist.

If you feel unwell, or notice changes in your mood or health, speak to your GP.

For more information, visit NHS – Living well with dementia.

Doing things you enjoy can help you feel good, stay active and connect with other people.

You may be able to continue your favourite activities or try something new. Some activities may need to change to suit your needs.

Here are some ideas.

Getting outdoors

  • Going for a walk or visiting a park

  • Gardening or caring for plants

  • Spending time at the beach or in the countryside

  • Watching birds or enjoying nature

Spending time with others

  • Meeting friends or family for a meal or coffee

  • Joining a group or club

  • Spending time with pets

  • Volunteering or helping others

Being creative

  • Painting, drawing or making crafts

  • Listening to music or singing

  • Taking photographs

  • Looking through photo albums

  • Reading or listening to stories

Keeping active

  • Swimming or dancing

  • Playing gentle sports

  • Trying yoga or other exercise classes

  • Visiting museums, galleries or places you enjoy

Relaxing at home

  • Watching a favourite film or programme

  • Doing puzzles or playing games

  • Cooking or baking

  • Listening to the radio

  • Planning a day out or holiday

Choose activities that interest you. You do not need to do everything on this list.

You can find more ideas in the NHS guide to activities for people with dementia.

Being diagnosed with dementia can bring many different feelings.

You may feel shocked, worried, angry, sad or relieved to have an explanation for the changes you have noticed.

You might worry about your future, your family or how dementia will affect your daily life.

Everyone responds differently. Your feelings may also change over time.

Ways to manage your feelings

There are things you can try that may help.

  • Talk to someone you trust. Sharing your worries with a friend, family member or healthcare professional can help.

  • Keep doing things you enjoy. Hobbies and social activities can help you feel connected to others.

  • Stay active. Gentle exercise, such as walking, can help improve your mood.

  • Take time to relax. Listen to music, spend time outdoors or try calming activities.

  • Write things down. Keeping a diary or making a book of photos and memories can help you express your feelings.

  • Plan ahead. Making decisions about your future may help you feel more in control.

Talking to other people with dementia

You may find it helpful to meet other people who understand what you are going through.

Support groups can give you a chance to share experiences, ask questions and get advice.

You can find support through the Alzheimer's Society or Dementia UK.

Getting professional support

If you are finding your feelings hard to manage, speak to your GP or healthcare professional.

Talking therapies and other treatments may help with anxiety, low mood or depression.

You can also find out about the therapies available through our Young Onset Dementia service.